Best of Season 9

Season 9 of Family Comes First™ has been inspirational and filled with stories that are heartwarming and moving. On this show, The Best of Season 9, we will look back on the families and resources that moved us during this season.

Our guests on these past 6 shows are so courageous and committed to their missions. They remind us how important it is to give back and to always look at the glass as half full.

We want to give a special “thank you” to our guests who have made this past season so special. Thank you for joining us and inspiring us with your stories.

Operation Babylift

On this episode of Family Comes First, Operation Babylift, we reacquaint you with Lana Noone. Lana was on our show back in 2009, the second season of Family Comes First. Lana and her late husband, Byron were the pioneers for international adoption on Long Island in the 70’s.

Previously when Lana joined us, she shared with us that since she was unable to have a baby, she and her husband decided to adopt. They ultimately adopted a baby from a foreign country since the wait for an American baby was approximately two years; she couldn’t fathom being childless for any longer.

On this show, she shares with us her mission, to spread the word about Operation Babylift. Operation Babylift involved the evacuation of 10,300 babies and children from Saigon at the end of the Vietnam War. Lana has been involved in many efforts to unite those involved in the Babylift. She has written a book about her family and Operation Babylift, as well as cowrote a play, “Children of the April Rain.”

21st Century Family

Imagine being a child growing up without a home or a family to call your own; being virtually alone in the world.  Unfortunately, this is a reality for thousands of children in the foster care system today.  The majority of foster children are 3 years of age or older and at least 1/3 of them have disabilities. It is a sad truth, but most people looking to adopt children are less likely to adopt an older child or a child with special needs.

During this brand new episode of Family Comes First, 21st Century Family, we hear from two unique families that went against that norm in different ways.

Listening to the Deaf

Learning that your child has hearing loss can be a very emotional discovery.

Parents are often overwhelmed with many emotions. They must quickly learn a great deal about how to best help their child. Oftentimes, parents don’t know where to turn for information and support when they learn their child is deaf or hearing impaired.

On this brand new episode of Family Comes First “Listening to the Deaf,” we learn about two families who each have a child with hearing loss, and hear from the schools that support them.

Parents Know Best

Parents and educators know that children with Special Needs have gifts and talents and it’s just a matter of unleashing their full potential and making sure that parents and teachers have the right information, tools, and support to help the children flourish.On this episode of Family Comes First, “Parents Know Best” we meet with Christian and Terrie Killoran. Christian and Terrie have a son, Aiden who has Down syndrome. On the show, they share with us the story of their son, Aiden and their battle with the school district to allow Aiden to continue his education at the school that would be the normal path for him.

IMG_3572Aiden had been attending elementary school and his parents were planning on sending him to middle school in the same district however, that school does not have a program for children with special needs and will not accept him. This means that Aiden will have to attend a school in a neighboring community, one separate from his classmates and siblings. The larger issue they discuss is his future success within his community. As parents, they want Aiden to flourish in his community by getting a job once he graduates, developing relationships with people in his community and being successful as a contributing member of the community. They fear if he attends school outside of his community he will not have these opportunities.

During this show, we also skype with Sara Hart Weir, the Executive Director at the National Down Syndrome Society. Sara explains, “…people with Down Syndrome can live long healthy lives when they are given the extra support when they’re able to go to an inclusive school , like what we’re pushing for Aiden, they’re able to work in the community, go to post-secondary education and pursue their own hopes, dreams and aspirations, just like everyone else.”

Elizabeth Einhart, a special education teacher with a masters in special education joins us to give the educators perspective, having the knowledge of what is necessary to educate children with special needs. Elizabeth clarifies how in an integrated class setting, individualized education plan’s (IEP’s) helps provide some additional support to bridge the education of a student with special needs to the general curriculum. She also expresses how the whole point of having an integrated classroom setting is to expose the children to real life experiences and teach them about compassion and kindness.

Adrienne Arkontaky, a special needs attorney with the Cuddy Law Firm provides further IMG_3575insights and clarification on these issues discussed during the show.  Adrienne explains, “The responsibility of the school district is to provide a free appropriate public education at no cost to the families and what the Individuals with Disabilities Education Act says is that the school districts must provide an education in the lease restrictive environment and to the greatest extent possible in a community school.”

Every child is unique. Parents need to be engaged and proactive to ensure their child with special needs is afforded every opportunity to realize their full potential.

Resources

Cuddy Law Firm, P.L.L.C
Cuddy Law FirmCuddy Law Firm, P.L.L.C is a Special Education Law Firm who specializes in providing comprehensive legal services to families of individuals with special needs.

 

National Down Syndrome Society

ndss-logoThe mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.

Saving Lives

Sadly, each day, 22 men, women and children die waiting to receive a lifesaving organ transplant. Fortunately, over 650,000 lives have been saved since 1988 because of donors, many of them not biologically related to the recipient.On this episode of Family Comes First™, “Saving Lives” we meet with Cindy Somma, who decided to give the gift of life to a relative and ended up saving the life of another. Cindy shares with us her thought process when choosing to donate her kidney and how she unexpectedly ended up saving the life of a stranger.

Also joining us on this episode of Family Comes First™ is Gillian Cohen, a young woman who was given the gift of life through a liver transplant when she was just 7 years old.  She shares how this experience has inspired her to be an advocate with LiveOnNY to promote organ donation.

We also welcome Karen Cummings from LiveOnNY to share how someone can register to become a donor and how important it is to educate the community on organ donation so they too, cansave lives. Karen explains, “…one person can actually save up to 8 lives through organ donation because you can donate both kidneys, both lungs, your liver, pancreas, your heart. One person can donate up to 8 organs via transplants and enhance up to 50 lives through tissue implants.” She hopes to carry out LiveOnNY’s mission to create a culture of donation. They hope one day, it will not be unusual to discuss organ donation and there will be less of a stigma about doing so.

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Resources

Live On NY

Live on NYLiveOnNY is a nonprofit, federally designated organ procurement organization (OPO) dedicated to the recovery of organs and tissue for transplant in the greater New York metropolitan area. Established in 1978, LiveOnNY is the second largest OPO in the United States, serving a culturally and ethnically diverse population of 13 million.

They work closely with 10 transplant centers and more than 90 hospitals in the region to facilitate donation. Additionally, they strive to raise awareness for organ, eye, and tissue donation and transplantation, educate the public, and encourage residents to enroll in the New York State Donate Life Registry.

Heroes of 9/11 – Responders

Co-hosts, Vincent J. Russo and Victoria Roberts Drogin wereprivileged to honor the first responders who fought to save the lives of so many.

On this show, Heroes of 9/11, we are joined by first responder, Tim Brown. Tim is a firefighter who responded to the call on September 11, 2001 and rushed immediately into ground zero.  Tim gives us a first-hand look into the events of the day and shares with you his story of the day we lost – 343 New York City firefighters, 37 port authority officers and 23 New York City police officers. All Heroes.

Also joining us is Troy Rosasco, Esq. of Turley, Redmond, Rosasco & Rosasco, LLP.  Troy provides guidance to the first responders who are now facing serious medical issues due to their time at ground zero and their families.  He discusses the two parts to the James Zadroga 9/11 Health and Compensation Act, which provides medical monitoring, treatment and compensation to the 9/11 survivors and responders.

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Also be sure to watch the episodeNo Greater Love.  During this show, we met with one of the heroes of 9/11, Welles Remy Crowther’s parents, Alison and Jefferson Crowther.


Resources

Turley Redmond Rosasco & Rosasco, L.L.P.

Rosasco logoTurley Redmond Rosasco & Rosasco, L.L.P., has over 25 years’ experience representing injured and disabled workers in Queens and Long Island.